Parkinson’s Y Su Familia: ¿Cómo influye la genética? (Virtual)

Acompáñenos en una presentación informativa sobre la enfermedad de Parkinson, ofrecida completamente en español.

En esta presentación, explicaremos qué es la enfermedad de Parkinson y cómo los genes y los antecedentes familiares pueden estar relacionados con ella.

El Dr. Mata también hablará sobre cómo la investigación nos ayuda a comprender mejor el Parkinson, encontrar nuevos tratamientos y entender por qué es importante participar en estudios de investigación.

La presentación estará a cargo del Dr. Ignacio Mata, investigador de Parkinson reconocido internacionalmente.

Adventure with Parkinson’s: Inspiration and Practical Strategies (Virtual)

Get inspired and gain practical tips for staying active, adapting to Parkinson’s, and pursuing adventures and goals that matter to you.

What does adventure look like after a Parkinson’s diagnosis? For Troy Reinhart, it has included traveling to Everest Base Camp and summiting Mount Kilimanjaro. But you don’t have to be climbing a mountain to have your own adventure. Maybe there’s a trip you’d like to take, an activity you want to get back to, or something new you’ve been curious to try.

Join Troy as he shares what he’s learned from traveling and taking on some incredible adventures while living with Parkinson’s. Carol-Ann Nelson, PT, DPT, NCS, MSCS with Destination Rehab, will bring a physical therapist’s perspective to the conversation, with practical tips for preparing for travel and activity, planning around changes in medications or mobility, and staying active safely while still working toward personal goals.

Whether your next adventure is a trip around the world, a walk around the block, or something in between, you’ll leave with inspiration from Troy’s story and practical ideas to help you keep moving toward what matters to you.

Long Term Care Considerations (Virtual)

If living at home is no longer feasible, you face decision after decision. Let’s help explain the options and understand your rights.

Debbie Boures, Deputy State Long-Term Care Ombudsman with Oregon Long Term Care Ombudsman program, will talk about options that are available for care when living at home is no longer an option.

How do you decide which type of facility best suits your needs? If care needs change will the facility be able to accommodate you? Where can you find information on the regulatory history of a facility?

She will discuss ways to make the transition go more smoothly. What questions should you ask when touring a facility? There are many! The role of the volunteer Ombudsman is an important one. You will learn when to utilize their support and learn what rights residents have in assisted living and nursing home care. We will discuss what types of things an Ombudsman can assist you with.

Long Term Care Professional Training Series (Virtual)

If you work directly with people with Parkinson’s, this training covers the best practices to elevate the quality of care and improve lives.

This training is designed to provide any professional working with people with Parkinson’s disease a solid foundation about best practices in managing it. Staff in long term care settings, rehab, adult foster care, and in-home care will gain crucial knowledge that is easily understood and applied in everyday situations.

This class will meet on Zoom on Thursdays from 3 – 4:00 for 5 weeks. Affordable at $25 for the whole series or $10 per class. It is more than the 5 hours of live instruction. The class includes a digital workbook companion containing additional resources not covered in the course. There are video and article links to prepare you with more background prior to each session.

Beaverton: In-Person Singalong

Join us for a guided in person song circle to practice projection, voice control and coordination through the joy of singing! Each session will start with a practice vocal warm-up and then sing your favorite songs with live guitar accompaniment.

We will sing in person at the PRO office in Beaverton (8880 SW Nimbus Ave., Ste B, Beaverton, OR 97008). If you’re looking for a virtual option, we’ll also have a Zoom Sing-Along September 23rd! You’re welcome to join either or both!

Deep Brain Stimulation (DBS) Conversations Summer Session: Speech & Swallowing

Are you curious about Deep Brain Stimulation (DBS) as a treatment option for Parkinson’s, or wondering what the experience is really like?

If you or someone you love is considering Deep Brain Stimulation (DBS), understanding how it may affect speech and swallowing is an important part of the decision. In this special virtual DBS Conversations program, Brooke Shea, M.S., CCC-SLP, Speech Language Pathologist with OHSU and member of OHSU’s multidisciplinary DBS team, will help guide us through this important topic in a clear and approachable way.

Brooke will explain why speech and swallowing evaluations are an essential step before DBS surgery, what these assessments may include, and how they help individuals and care teams better understand whether DBS is the right fit. She will also discuss what changes in speech and swallowing may occur as a result of DBS surgery, helping participants better understand what to expect before and after the procedure.

*This group is intended for general education, support and sharing of experiences. The subject discussed in the group is not to be taken as medical advice or as consultation for DBS. Please consult your healthcare team regarding your personal care and treatment.

Deep Brain Stimulation (DBS) Conversations Spring Session

Are you curious about Deep Brain Stimulation (DBS) as a treatment option for Parkinson’s, or wondering what the experience is really like?

Join our quarterly DBS Conversations, a virtual Zoom gathering centered on real experiences. Individuals living with Parkinson’s who have undergone DBS will share what led them to consider surgery, what the process looked like, and how things have evolved since. There will also be time for open conversation, questions, and connection.

This group is open to people with Parkinson’s and their care partners. It’s a casual, supportive space where you’re welcome to listen, ask questions, or share if you’d like.

*This group is intended for support and sharing of experiences. The subject discussed in the group is not to be taken as medical advice or as consultation for DBS. Please consult your healthcare team regarding your personal care and treatment.

Parkinson’s 101 Webinar

Presented by Dr. Elise Anderson, M.D., Providence Neuroscience Institute, Movement Disorder Program

Have you been recently diagnosed with Parkinson’s? Are you concerned about yourself or a loved one? Or do you just have questions and want to learn more? This program will help you understand what Parkinson’s is and is not and why it is difficult to diagnose.

Parkinson’s disease (PD), is a chronic, neurodegenerative condition that can cause a wide range of symptoms and challenges. In this presentation, Dr. Anderson will provide an overview of the signs and symptoms of PD, what is happening physiologically to cause them, and most importantly what treatment options and resources are available. Dr. Anderson will also discuss the importance of exercise, as well as share some guidelines and strategies for managing symptoms.

 

Register

 

How Exercise Helps PD: The Science and Personal Stories

Join us for a roundtable talk about the latest evidence on how exercise slows disease progression and the experiences of PD exercise class participants.

We talk about it often – exercise is the single intervention that has been shown to slow the progression of Parkinson’s. But what are the options? How are exercise recommendations evolving? And what are the first-hand experiences of participants in PD-specific classes? Join this informative virtual roundtable discussion with exercise instructors, researchers, and individuals living with Parkinson’s.

 

Register

 

Tea Time Wiggle Break, 52 Moves

This is a half hour class for any level of ability or energy.  We go through a series of functional moves in a playful style that accommodates “your body’s way”  Be sure to register in advance of class time to receive the link to class session. https://momence.com/u/moving-toward-health

Instructor: Janet Hollander

Fee: $5/ class